Medical Update

It has been a while since I gave an update on my photopheresis treatments. I had two treatments in December (one trip) and I also went to lung transplant clinic. The transplant docs were pleased at how my photopheresis treatments are going and my lung function was up!! 87% FEV1... WBC (white blood count) is good and Kidney function good.
But... there is always a but... isn't there... BUT.... they want to do a couple of new things as well to save my new lungs.

1. Start taking Azithromycin every Monday, Wednesday and Friday
2. Get some Esophagus Studies to see if I have acid reflux. (Acid reflux will destroy your lungs) to be done in February.

I had 2 photopheresis treatments (one trip) in January. The first day went great. The second day I had a few problems with blood clots but my A number 1 photopheresis team took care of that and the treatment went fine.

New Year's at Sea World

Leah wants to become a marine biologist so we went to Sea World for New Years. Here we are having dinner with Shamu. Notice I have on a wet suit. That is because Shamu came right up to our table! (No we were not eating fish)