PULMONARY FUNCTION TESTS

I am so excited... at Lung Tranplant Clinc my pulmonary functions were back up! My FVC was 90% and my FEV1 was 87%. Photopheresis is really helping me out!

Susan wins INSPIRATION AWARD

At the ING Marathon in Atlanta, team 65 Roses surprised me with the Inspiration Award. What an honor! The trophy says: "

Miles for Cystic Fibrosis Inspire Award 2009

Presented to:

Susan Burroughs

Founder of the Cystic Fibrosis-Reaching Out Foundation

Courageous, Long-Term Lung Transplant Survivor

Champion of People with Cystic Fibrosis

Atlanta, Georgia

March 27, 2009

MORE SKIN CANCER

Darn these anti rejection drugs.... I have 4 more skin cancers that I have to get removed... They won't do them all at once. I have to get them all done separately. Did I ever mention that I would rather be out on this nice spring day instead of going to the doctor! But hey! I am so thankful to be alive.

The transplant team changed my anti-rejection drug to rapamune. They hope it will help with all the skin cancers. Cellcept might have been part of the problem... However, I am blonde, blue eyes and fair skinned too!

Photopheresis is going great......