SEE MY TRANSPLANT ON YOU TUBE

To see CNN video of my transplant go to http://www.youtube.com/. Then search " Susan Burroughs".

Are you on FACEBOOK? If so, send me a friend request so we can be friends! "Susan Crenshaw Burroughs"

What is Cystic Fibrosis?

Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:
clogs the lungs and leads to life-threatening lung infections; and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
For more information visit http://www.reachingoutfoundation.org/

Showing posts with label Vacation. Show all posts
Showing posts with label Vacation. Show all posts

Thursday, January 1, 2009

New Year's at Sea World


Leah wants to become a marine biologist so we went to Sea World for New Years. Here we are having dinner with Shamu. Notice I have on a wet suit. That is because Shamu came right up to our table! (No we were not eating fish)

Wednesday, July 30, 2008

Back from Wyoming





No medical update.... but we did just return from Jackson Hole, Wyoming, Yellowstone National Park and the Grand Tetons. We had a wonderful time and I did not think about my "lungs" until I got on the plane to come home. We went rafting down the Snake River, horseback riding, we saw Old Faithful, Grand Canyon of Yellowstone and we did some short hikes.




YES... I did wear my mask!



I have noticed that my pulmonary functions were lower in Wyoming but when I checked them when I got home, they were still not so good. Well... not to worry.... that is why I should be starting PHOTOPHERESIS on Monday.
I will have blood work "WBC" tomorrow and if everything turns out right.... I will FINALLY begin "Photo". I will let you know Friday the results.